After a series of unscripted events, I ended up with unexpected (but very welcome) company on my week my week of solitude.
My friend and her four-year-old daughter met up with me. It was eye-opening experience. You see, this little lady is living life with Cystic Fibrosis. In all likelihood, you do not know anyone with CF. Count yourself lucky... it is a terrible, terrible, rare genetic disease. It is a life of hospital stays of 17-20 days which feel much like solitary confinement. It's a life of expensive drugs, enzymes, high caloric diets, and multiple daily therapies which are each 45 minutes long. It's trying to shield your child from the common cold... for her it could possibly be deadly.
It's a life of fundraising in hopes of better drugs and hoping for a cure. It's a life of pleading with insurance companies, doctors, and pharmacies. There is no money for research. The pharmaceutical companies won't fund research... Cystic Fibrosis is such a rare disease, new drugs would not be profitable. Without a high return on investment, Cystic Fibrosis drugs do not fit the business model.
It is a heart-breaking travesty in every possible way.
So, to those of us who live the med life, I ask you to remember those who are living the flip-side of our med lives. Those are the patients and their families who are living their lives suspended somewhere between desperation and hope, praying for cures, praying for a healthy life
Now let's support all those who are living the med life!
March Medical Monday Link-Up and BlogHop
Are you confused if you qualify for the party?
If you have a pager interrupting your life... you DEFINITELY qualify!
Do you work in healthcare?
Doctor? Nurse? EMT? Chiropractor? Vet? Dentist? Therapist?
MA? NA? PA? DA?
Are you the spouse or SO of a healthcare worker/student?
Are you a nursing student? Medical student?
Intern? Resident? Fellow?
You get the picture, right? Come on, now... don't be shy! Let's keep growing and meeting new bloggers, so we can build a community of support and friendship, learn from one another, and share our stories.
LINK UP YOUR POST!
Here are the rules:
- Follow your co-hosts via Bloglovin, GFC (if you are Blogger), FB, email or Twitter.
- Link up you medical/med life blog. If your blog name does not clearly state how you fit in to the med/med life world, please write a little intro or link up a specific post which clearly demonstrates your connection.
- Visit at least 3 other link ups, comment, introduce yourself, and tell the your stopping by or following from MM!
- Help spread the word by using our button on your post or sidebar, tweet about Medical Monday, or spread the word on Facebook! The more the merrier for all of us.
Complete step one by following your co-hosts:
Want to be awesome? Help us spread the word by grabbing and posting the Medical Monday button on your post or sidebar...