Monday, March 3, 2014

Medical Monday {March Edition, Volume 2)

This past week, I tried my best to escape living a Dr.'s Wife life. I packed myself up and left the house for a week... by myself... or so I thought.

After a series of unscripted events, I ended up with unexpected (but very welcome) company on my week my week of solitude.

My friend and her four-year-old daughter met up with me. It was eye-opening experience. You see, this little lady is living life with Cystic Fibrosis. In all likelihood, you do not know anyone with CF. Count yourself lucky... it is a terrible, terrible, rare genetic disease. It is a life of hospital stays of 17-20 days which feel much like solitary confinement. It's a life of expensive drugs, enzymes, high caloric diets, and multiple daily therapies which are each 45 minutes long. It's trying to shield your child from the common cold... for her it could possibly be deadly.

It's a life of fundraising in hopes of better drugs and hoping for a cure. It's a life of pleading with insurance companies, doctors, and pharmacies. There is no money for research. The pharmaceutical companies won't fund research... Cystic Fibrosis is such a rare disease, new drugs would not be profitable. Without a high return on investment, Cystic Fibrosis drugs do not fit the business model.

It is a heart-breaking travesty in every possible way.

So, to those of us who live the med life, I ask you to remember those who are living the flip-side of our med lives. Those are the patients and their families who are living their lives suspended somewhere between desperation and hope, praying for cures, praying for a healthy life

Now let's support all those who are living the med life!



March Medical Monday Link-Up and BlogHop


Are you confused if you qualify for the party?


If you have a pager interrupting your life... you DEFINITELY qualify!
Do you work in healthcare?
Doctor? Nurse? EMT? Chiropractor? Vet? Dentist? Therapist?
MA? NA? PA? DA?
Are you the spouse or SO of a healthcare worker/student?
Are you a nursing student? Medical student?
Intern? Resident? Fellow?

You get the picture, right? Come on, now... don't be shy! Let's keep growing and meeting new bloggers, so we can build a community of support and friendship, learn from one another, and share our stories.

LINK UP YOUR POST!

Here are the rules:
  1. Follow your co-hosts via Bloglovin, GFC (if you are Blogger), FB, email or Twitter.
  2. Link up you medical/med life blog. If your blog name does not clearly state how you fit in to the med/med life world, please write a little intro or link up a specific post which clearly demonstrates your connection.
  3. Visit at least 3 other link ups, comment, introduce yourself, and tell the your stopping by or following from MM!
  4. Help spread the word by using our button on your post or sidebar, tweet about Medical Monday, or spread the word on Facebook! The more the merrier for all of us.
Complete step one by following your co-hosts:
Want to be awesome? Help us spread the word by grabbing and posting the Medical Monday button on your post or sidebar...



Want to co-host next month? Shoot Jane an email at fromadoctorswife@gmail.com and be sure to write "Medical Monday Co-host Request" in the subject field.

Now, link up below and have fun! The link up is open through Friday, so be sure to come back during the week to check some great reads!

14 comments:

  1. My friend's son had CF. He passed away at 21. His funeral was the saddest one I've ever attended. My heart goes out to your friend!

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    1. Ugh... that makes my stomach turn. :( I really applaud those who work to find cures and new therapies for rare diseases, despite the lack of funding.

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  2. Oh, this post makes my heart heavy. Glad you were able to spend some time with your friends.

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    1. It really put all my "problems" in perspective. I think I'll probably think of her every time I am feeling frustrated with Doc H's schedule. I'm sure that will help turn my attitude around.

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  3. Hi Emma, thanks for letting me co-host again!
    Love your blog!

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  4. You're totally right, CF is a horrible disease and such a hard burden to bear for both the patient and their family. Heartbreaking.

    Also, I don't blame you for wanting to get away from being the "doctor's wife" for a while! I mean, I don't know what's going on in your life, but I can imagine that it must be hard sometimes, to have that as part of your identity. :)

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    Replies
    1. It is horrible.
      I just get pulled in so many different directions when working from home...I was trying to get away to focus on some work I needed to get done. Too many people, too much drama in this house! I even left the dog behind!! LOL!

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  5. You're posts are so well-written. What a beautiful reminder to see the other side of medicine through the eyes of our patients.

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  6. A good friend of mine's daughter has CF. She's in her senior year of HS. It's been a long road for them-- I've known her since she was a baby. I donate to the CF Foundation every year for her. ((hugs)) for you and your friend. davita

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  7. Cystic fibrosis is such a difficult disease because it starts with symptoms from a very young age. Sometime empathy the ability to understand the plight of another is a powerful gift for any doctor. I am glad you were able to get away. I am back from my getaway and it does recharge the brain cells.

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  8. Just stopping by to say hello! I linked up my WordPress an hour or so ago only to realize that my recent posts don't explain my med connection...would of been better to link my 'About Me'. So: My other half is Argentine (I'm from the US) and "we're" down here finishing up med school. It works a bit differently over here, but soon we'll be back north for the residency. Cheers!

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  9. I had two uncles and one aunt pass away from CF. Two of them passed away when they were very young, but my Uncle Mike lived until his 30's. He passed away in 1989, and his ability to live that long blew everyone away. It was pretty rare for someone with CF to live that long back in the 80's. However, the medicines and treatments have come a long way since then for people living with CF. For example, my uncle's wife would have to pound on his back several times a day to loosen up the mucus and help him breath better. Now they have machine vests that can do that for them and I'm sure they are a lot more effective. I agree, there needs to be more funding and awareness, but at least there have been some advancements. Thank you for bringing attention to this horrible disease. As a family member it is heartbreaking to watch them suffer, knowing you will lose them in the end. Prayers for your friend and her daughter!!

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